So, sometime late last fall, early November I think, I wrote a letter to Anthony with the intention of him being able to carry it with him & read it when he felt moments of despair. It was important to me, more important at that time then it had been previously for him to know his value & worth to those of us who loved him most as it was something he struggled with a great deal. So great was his love for me & the rest of us that he worried terribly about what his illness was doing to us emotionally (he was selfless like that, one of the many things I loved about him). Well I never got to give Anthony the letter because when it was done he could not see well enough to read it anymore, I decided I would read it to him one Tuesday night (date night) but time had other ideas and I never had the chance, so to mark a year since I lost my greatest love I decided to "undress my soul" as Raine says & post it here. I love you My Magic Man, always & forever.
My dearest Anthony, my one and only love.
I wanted to write you a letter to share my love for you on paper & besides I have never written you a paper letter. There are our emails but I thought this way you could keep it with you and read it when you're feeling down, it's purpose is to help bring you back up.
Very early on, okay like the first or second time we met, I felt a connection, a kind of oneness between us. It stayed with me (and I now know with you also) and I was reminded each time we saw each other. When we began "dating" I knew very early on that you loved me exactly the way I was and I knew that would never change. I always knew my heart was safe with you and I never had to worry about you leaving me (I hope I have made you feel that way too). I am yours, fully, completely in every way and that will never change. Your every touch sends shivers through me and your love for me fills each touch. I have never felt such a powerful, unconditional love.
Your suffering has horrified me, your strength and determination have inspired me and filled me with awe and wonder. Your love for me is exquisite and you must always remember how that love has and continues to help me learn and grow and if you leave this place before me, I know with absolute certainty that this love will never die. It will live within us forever, wherever we are because it's purity and unconditioned beauty lives within each of our beings so it cannot die.
Anthony, my love, you are strong and passionate, unselfish and thoughtful. I love your sense of humour, your positivity and ability to admit your mistakes and learn from them. I love your thirst for knowledge and your wonder and your curiosity, the amazing ability you have to savour everything and find beauty in all that surrounds your life. The way you feel good when you watch people around you enjoying life even though so many of the things you love to do have been taken from you astounds me and makes me so proud to say you are mine. You are smart and very sexy and you make me feel treasured, adored and cherished. All these things and so much more are why you are so loved by so many (well hopefully not the sexy part, that's for just me). You have taught me to always fight not to lose any part of myself, how to be soft and vulnerable without fear of betrayal or judgement, how to be determined but not too hardass, to not give up on myself or the people I love. You've taught me to try and make things right if it's important and it's heading in the wrong direction. Every person who has ever been before, is now or will be in the future a part of your life is richer because of it.
My wish for you, hold on to and cherish the joy and love that surrounds you. Forgive yourself for all the mistakes made and wrongs you feel you have inflicted because you are human like us all and we all have made mistakes and caused pain. You have learned important lessons and grown from these. Recognize your beauty and worth, your importance in the lives of those who love you. Never lose who you are and let yourself live in peace of mind and soul.
You have built wonderful connections with all of us that will stay with us forever. As a parent you follow your heart, make decisions based on deep love and caring for your children and the desire to keep them safe and help them learn and grow. You give them the freedom to explore and find themselves and become who they were meant to be just as your parents did and do for you. I believe strongly that a lot of what we teach our children comes not from what we say but what they see us do. Your children have learned by observing your example and living their lives with you, all of your wonderful qualities. You have set a very good example for them! You have so many friends who love you dearly and stand beside you in life, a brother you have grown with, fought with, played with as a child, walked with down the path of life, never far apart and from this a deep respect and love has come. A best friend with whom I recognized a deep connection between the two of you the first time I met him, so strong a connection I was kinda afraid of him at first (I didn't want him to be suspicious and afraid I would hurt you), I felt the love between you, so strong like ours. A connection deep and long, grown over many years together. You have taught us all to live for the moment with your acceptance of your illness, to move forward with hope, will and belief in ourselves, all this with very little complaint (certainly a great deal less than you are entitled to in my opinion).
Anthony, you are my Magic Man, forever and ever because you fill my life with the most magical love, every time I see you my heart feels like it is going to fly right out of my body, the power of the love I have for you is nothing short of astounding, thank you baby for giving yourself to me, I am forever grateful for you. Our time together is and will always be the part of my life I cherish most.
Always
Your Smiling Angel xo
Saturday, December 1, 2012
Thursday, June 21, 2012
Afterthoughts.....
It's
been almost seven months since Anthony left this world & here I am,
his partner in love, to share some after thoughts.
Since the title of this entry is "Afterthoughts", I thought I would
begin with the thought I had as I sat down to write this. I began to
think back to the time when Anthony & my relationship changed from
friendship (OK, friends with a very strong attraction to one another
& unexplained feeling of some powerful connection) to lovers &
life partners. We fell in love through a series of emails that
continued throughout our time together until it was no longer possible
due to his illness. Emails are funny, they are like letters but also
like conversation but with time to think of a response. It was unique
& I loved it, I miss it. In the early emails we shared everything
about each
other & our pasts (yes, I do mean everything). It was our
acceptance of each others past's & mistakes made with no judgements
or jealousy's that was part of what allowed our love to grow so strong
& magical.
So. this blog idea developed some time
ago & it took this long for me to be able to get myself to a place
where I could bring myself to put it all out there. The thoughts are
taken from the many things people have said to me privately, some I have
heard during group conversations with friends & family & some
from social media & text messages cause that's the world we all live
in. The thinkers of the thoughts are not revealed (some will be obvious) but
they come from friends, family, exes & me of course. When I
approached Jason (Anthony's brother) about my idea he sent me some letters
to be included which I will post separately because they deserve their
own entry.
Afterthoughts.....driving by his house
(it is now sold & occupied by others) it has become increasingly
difficult to control my emotions; when I look at that picture above his
bass I really miss him; if love could have saved you, you would have
lived forever; I have no one to talk to anymore; I hope I did enough for
him when he needed me; we didn't get a chance to say everything we
wanted to say; I hope you could feel my presence & love in the days
before you died & that I did a good job taking care of you; keeping
busy keeps me from thinking too much; 43 years old is too young, I want a
redo; Mom, do you know how to make those potatoes Anthony used to make,
cause I really liked them?; I miss your texts with the weekly No Frills
specials; I am not
ready for that search, it is too much; hope all is well, if not, you
are not alone; what
a heart wrenching thing, sorting & throwing out the belongings of
the one you love more than anything into a huge garbage bin, it feels
like my heart has been ripped out all over again; I am feeling exhausted
from all that has been this past year; my soul hurts, I feel like I am
falling apart; the sound of him singing both comforts me & breaks my
heart; I
can feel the sun's warmth again & it tears my heart out because I
remember when you buried your head in my chest & sobbed as you said
you would never feel that again; I feel weak, I don't care about
anything, I am simply existing; Life is too hard for me right now; I am
surrounded by so much love yet I feel so alone, WTF is up with that?;
house closes today, I cannot believe I will never walk through that door
again, there was so much love there; I
am really glad you loved my Dad, none of the others loved him like you
did & it made him happy. I am glad he died happy because of you; I
would give anything to hear you call me your Dragonfly just one more
time; I know time will ease the pain & sorrow but in a way I don't
want
that because while both are so powerful I can feel it physically
sometimes, once it lessens I am afraid he will not feel as close to me.
A couple more......my best friend's death was a reopening of a wound not yet healed, in some ways my Mother's death was a bit of a safety net to what I would be witness to (not to sound disrespectful to my mom), but it would be the first time I experienced someone (a loved one) die in front of me, I think it was in late July I noticed Anthony's arms and the way they looked, weak and fragile, I had seen my Mother's arms look the same way, but I never told anyone, didn't want to sound like I had given up, which I never did.........we could talk about anything, I never had that with anyone else.......my music mate, band mate, co writer of songs, a relationship I will always be grateful for, my talent as a guitarist or musician owes credit to Anthony, Jason and the Biagi family big time. Brother Studios is my tribute to all they gave, like carrying on a tradition. Spiritual signs, gifts and energies have been ever present in people I have recently met or close relationships I have built with others he is here and I feel him with us, why do I believe in these things? A few weeks before my Mother passed she had asked my Father if I had found a puppy, I had not, a few months later the most beautiful little puppy walked into my life, truly a godsend, a sign, a gift, a gift like Anthony's friendship. Although our close connection with the love of music is a daily reminder of songs I will never play again or songs we would talk to each other about, some would say it's a curse, I think it means I will always have him around, and through music and love, which I have plenty of, I will get through this, he touched many people and will be missed, it hasn't been easy, still a lot of disbelief, a certain feeling of being cheated out of many years of friendship and memories from both my Mother and Brother.....7 months past it feels like a flash of light, lost in darkness without your guidance it's a hard road to fight, Still smoking everyday, I think I smoke more and more just so I can leave early so I can see you once more, I know I wont, I wish I could, you taught me logic and open minded observation, how to analyze every situation. I am an observer from the outside looking in. You were my number 1 friend, my teacher my guide through life. I could talk to you about any idea or thought that entered my mind you wouldn't dispute it unless it was silly and somewhat stupid but you never called it that you just corrected the error in my mind and I was fine with that. With every passing second I wish I could bring you back even just for a minute so we could hug and laugh. As each day passes I see more and more of you within me, remember I started as a small seed, I was the fastest sperm you had in that shot, perhaps I'm getting a little vulgar but I think you'd enjoy that. I'm not sure what to do anymore.. every passing second I miss you more and more I love you, you are the omnipotent daddyman and shall always be.
A couple more......my best friend's death was a reopening of a wound not yet healed, in some ways my Mother's death was a bit of a safety net to what I would be witness to (not to sound disrespectful to my mom), but it would be the first time I experienced someone (a loved one) die in front of me, I think it was in late July I noticed Anthony's arms and the way they looked, weak and fragile, I had seen my Mother's arms look the same way, but I never told anyone, didn't want to sound like I had given up, which I never did.........we could talk about anything, I never had that with anyone else.......my music mate, band mate, co writer of songs, a relationship I will always be grateful for, my talent as a guitarist or musician owes credit to Anthony, Jason and the Biagi family big time. Brother Studios is my tribute to all they gave, like carrying on a tradition. Spiritual signs, gifts and energies have been ever present in people I have recently met or close relationships I have built with others he is here and I feel him with us, why do I believe in these things? A few weeks before my Mother passed she had asked my Father if I had found a puppy, I had not, a few months later the most beautiful little puppy walked into my life, truly a godsend, a sign, a gift, a gift like Anthony's friendship. Although our close connection with the love of music is a daily reminder of songs I will never play again or songs we would talk to each other about, some would say it's a curse, I think it means I will always have him around, and through music and love, which I have plenty of, I will get through this, he touched many people and will be missed, it hasn't been easy, still a lot of disbelief, a certain feeling of being cheated out of many years of friendship and memories from both my Mother and Brother.....7 months past it feels like a flash of light, lost in darkness without your guidance it's a hard road to fight, Still smoking everyday, I think I smoke more and more just so I can leave early so I can see you once more, I know I wont, I wish I could, you taught me logic and open minded observation, how to analyze every situation. I am an observer from the outside looking in. You were my number 1 friend, my teacher my guide through life. I could talk to you about any idea or thought that entered my mind you wouldn't dispute it unless it was silly and somewhat stupid but you never called it that you just corrected the error in my mind and I was fine with that. With every passing second I wish I could bring you back even just for a minute so we could hug and laugh. As each day passes I see more and more of you within me, remember I started as a small seed, I was the fastest sperm you had in that shot, perhaps I'm getting a little vulgar but I think you'd enjoy that. I'm not sure what to do anymore.. every passing second I miss you more and more I love you, you are the omnipotent daddyman and shall always be.
Grief
is not easy. It is a constant struggle to push through, it consumes
your thoughts, your heart, your spirit & your soul. It takes away
your motivation & your energy. It bombards you with sorrow, fear,
despair & sometimes anger. It floods your mind with unwelcome
thoughts & takes beautiful memories of magical times & turns
them into things that make you sob uncontrollably because you know those
magical times are gone forever (I know that one day the memories will
be beautiful for me again, I also know it's just not time yet). It
forces your mind to places you have
no interest in going & to consider your future when you don't want
to. And it intensifies as time passes. That is just a small part of
what grief does to me. I also grieve for the others who have lost
Anthony. A brother left with only memories & the crushing
realization that one of the few people who knew him from his first
breath of life cannot share the rest of his life with him. A sister in
law who was in reality his sister, whose love for him could be felt, who
struggles to support her husband, me, their beautiful girls & the
rest of the family through our grief all the while grieving herself.
Two mothers, one with a grown up son & a young & whimsical teen,
now without their Dad as she must try to pick up where Anthony left off,
the other with a teenage daughter & young son left to guide their
daughter through the most turbulent part of her life & left to try
to figure out how to see that their little boy remembers his Dad &
knows how much he loved him & to teach him the kind of man he was.
Two parents who had to watch their son, their first born endure such pain & suffering & then die, to any parent that is
unimaginable. A best friend, already rocked to the core at the loss of
his Mom only months before, now left without the person he could say
anything to, the one he went to with his troubles without fear of
judgement & knowing he would always be fully supported & loved,
his brother & soulmate in friendship, his beloved bandmate.
Four
children and two stepchildren, all beautiful & unique beings, all
who adored him. A Grandmother, woken from her afternoon nap to be told
her Grandson was gone & now must live out her life wondering why he
was taken so young. A host of close friends, part of his life since
they were children & teenagers, all with cherished memories &
the deep pain of his loss. It is fresh & powerful of each of us, in
different ways for all of us. And perhaps the most painful part of it
all, for me anyway, because I loved him so & because of the way he
loved me, I grieve the simple fact that he did not get to finish his
life, he had so much to give, he taught everyone who knew him so much
simply by the way he was, full of wonder & passion, loving, giving
& forgiving (to name a few things) & by the way he loved us all.
And finally, because
Anthony was always afraid of depressing
people with thoughts of darkness & despair, in his honour, I will
end this entry on a positive note. Along with the sorrow I am filled
with wonder & awe & gratitude for the deep love, understanding,
acceptance & compassion that has been showered upon me by Anthony's
friends & family, now too forever my friends and family. And by my
own group of friends, like Anthony's, my friends since I was a young
girl, it is comforting to know, without question that they all love me
& hold me close in their hearts, especially my best friend who calls
& texts me almost daily just to make sure I am ok. And to my own
family, the ones
that have been with me since the beginning, they love me & worry
about me too. And to my sister, as children we hated each other, as
adults she is more like a best friend. I could never express in words
how much this means & will always mean to me, if not for it all I
would be lost, completely broken, my soul & spirit destroyed. I
know Anthony would be so happy to know of the unbreakable bond shared by
his best friend & I & I believe our friendship was a gift to us
both from him, he knew we would be there for each other & take care
of each other and I cannot thank him & his beautiful, caring &
giving woman enough for accepting & supporting our friendship by
welcoming me into their lives so freely. He would also feel the same
way to see the love & support & the thoughtfulness of his
Brother & Wife, shown to me in so many ways and I can only hope my
presence in their lives does for them what theirs in mine does for me,
they are my Brother & Sister (I have 2 of each now). His parents,
words are hard to find, they love me as I do them and made me a part of
their lives & family freely. I feel like a daughter to them &
that is only a bit of why I love them so. To all of Anthony's friends
who have now become mine, thank you for accepting me & wanting to
keep me. I am overwhelmed & filled with wonder at the love that
surrounds me & am forever grateful for it. I have not one ounce of
regret and the gift of love, so pure & unconditional that Anthony
gave me will always be the most precious I have ever received. I am a lucky girl.
Monday, December 5, 2011
So here we are......
Anthony & I were working on a blog at the time he passed away on Dec 1/2011. The title above is the first words of his unfinished entry which I will post now. It will forever remain unfinished by him however I believe I can shed some light on where he was going with it.
"So here we are, it's finally happening, or so it seems. My current prognosis is 0-3 months, maybe 6. Ironically enough, Christmas has become a factor once again. My family, my friends, my smiling angel & I are still holding our heads up high. Knowing that miracles can happen & believing it gives us all hope that OUR current situation (and it is OUR situation as we are all doing it together) could play out differently then what the Doctors have told us irrespective of the reality that is still affecting us all.
It has been quite a ride & I don't mean for it to sound like I am giving up because I am not but there are certain realities that do require facing at this juncture...."
That is as far as we got however much discussion was held between us prior to beginning the writing of the actual entry. He wanted to let everyone know that he would not give up & he did not, not in any small way did he ever give up. Cancer destroyed his body, it was powerless to destroy his spirit. He wanted everyone to know he had found peace & deep love in his life in many places. It was important to Anthony that he tell us all how strong he knew we were & he asked me to make sure that we all take care of each other (we will baby, don't you worry about that). I am also pretty sure he asked all his friends & several of mine to take care of me too (and I am certain they will), he worried about me & all he loved with a selflessness that astounded me. He wanted to say that he had come to terms with his cancer & the end of his life. There was some anger, some regret but not too much of either considering what he faced on a daily basis for the last 2 years. Some discussions were of unfairness but he never talked about how unfair it was to him, only those of us he loved. Mostly though, in his last days when we talked, Anthony talked about living, loving, laughing, crying, sorrow & how to grieve (yes he left some instructions for us, imagine that!) and his gratefulness for his life & all of those who loved him. He was amazed we would take on the project of caring for him at home & accepted that care gracefully. He was surrounded by love in his last days & moments just as he should have been & I believe that love & the power of it is what allowed him to go. He fought as long & hard as he could & he was looking forward to an end to the pain & suffering he endured daily. He told me this & I believed him. He was unafraid. He had a few regrets he wanted to share even though he thought it was "kind of depressing" but it was important to him that readers see the reality so they will take steps to protect themselves and their loved ones, He regretted that he had so much more to learn & see & show & give & would not get the chance to do so, and, the fact that the ones he left behind would suffer sorrow & pain.
So that's some of what was on Anthony's mind. Alot to digest perhaps, hopefully some good food for thought. Stay tuned.
"So here we are, it's finally happening, or so it seems. My current prognosis is 0-3 months, maybe 6. Ironically enough, Christmas has become a factor once again. My family, my friends, my smiling angel & I are still holding our heads up high. Knowing that miracles can happen & believing it gives us all hope that OUR current situation (and it is OUR situation as we are all doing it together) could play out differently then what the Doctors have told us irrespective of the reality that is still affecting us all.
It has been quite a ride & I don't mean for it to sound like I am giving up because I am not but there are certain realities that do require facing at this juncture...."
That is as far as we got however much discussion was held between us prior to beginning the writing of the actual entry. He wanted to let everyone know that he would not give up & he did not, not in any small way did he ever give up. Cancer destroyed his body, it was powerless to destroy his spirit. He wanted everyone to know he had found peace & deep love in his life in many places. It was important to Anthony that he tell us all how strong he knew we were & he asked me to make sure that we all take care of each other (we will baby, don't you worry about that). I am also pretty sure he asked all his friends & several of mine to take care of me too (and I am certain they will), he worried about me & all he loved with a selflessness that astounded me. He wanted to say that he had come to terms with his cancer & the end of his life. There was some anger, some regret but not too much of either considering what he faced on a daily basis for the last 2 years. Some discussions were of unfairness but he never talked about how unfair it was to him, only those of us he loved. Mostly though, in his last days when we talked, Anthony talked about living, loving, laughing, crying, sorrow & how to grieve (yes he left some instructions for us, imagine that!) and his gratefulness for his life & all of those who loved him. He was amazed we would take on the project of caring for him at home & accepted that care gracefully. He was surrounded by love in his last days & moments just as he should have been & I believe that love & the power of it is what allowed him to go. He fought as long & hard as he could & he was looking forward to an end to the pain & suffering he endured daily. He told me this & I believed him. He was unafraid. He had a few regrets he wanted to share even though he thought it was "kind of depressing" but it was important to him that readers see the reality so they will take steps to protect themselves and their loved ones, He regretted that he had so much more to learn & see & show & give & would not get the chance to do so, and, the fact that the ones he left behind would suffer sorrow & pain.
So that's some of what was on Anthony's mind. Alot to digest perhaps, hopefully some good food for thought. Stay tuned.
Monday, September 26, 2011
Back again.
Living is a funny thing when it's the only thing you are doing. There is a difference between simply living and actually having a life. Being in my current condition, which is essentially, disabled, my days just flow together into one long day that never really starts or ends. Being out of the "rat race" does some strange things to your perspective. I`ll get back to that in a minute
A quick update on how things are going from the medical side of my life, there is little change. I'm still sleeping like a cat (hence very little blogging, among other things) I have to use a cane to walk now, and glasses to read. Steps are a problem, and I can`t drive right now because of my eyes, but I have been feeling an improvement in my circumstances. It could have something to do with my current drug intake. I just started a new treatment which is four rather large pills once daily. So, as of today, I am consuming 39 pills every 24 hours! (and if I don`t take them my body feels it) This can be tricky business to stay on top of, especially with my long sleeping hours.
Sleeping through my pain killer intake is the worst for me personally but irrespective of that there are still four children that require as much attention as I can give and I also have to find time eat. I went down to 135lbs when I was on chemo. I am currently at 140lbs and holding. I have been trying to increase my caloric intake with supplements and energy drinks but again, my increased need for sleep hinders my ability to stay on top of it. There is also the fact that my appetite is weak and the numbness in my face and lips (the radiation did not work as well as hoped, also related to my eye problem) can discourage me sometimes from eating as much as I should.
It amazes me how I essentially have free reign with my 24 hour days and yet sometimes still don`t have enough time to do everything that needs doing. We take for granted our ability to do so many things and use that ability to distract ourselves from life by keeping ourselves busy all the time so we don`t have to think about the important stuff, y'know, life, the universe, and everything.
I wanted to expound on this a little further but my eyes are just not cooperating so I'm gonna cut it short and try again later.
Cheers to all, I hope life is being good to you.
A quick update on how things are going from the medical side of my life, there is little change. I'm still sleeping like a cat (hence very little blogging, among other things) I have to use a cane to walk now, and glasses to read. Steps are a problem, and I can`t drive right now because of my eyes, but I have been feeling an improvement in my circumstances. It could have something to do with my current drug intake. I just started a new treatment which is four rather large pills once daily. So, as of today, I am consuming 39 pills every 24 hours! (and if I don`t take them my body feels it) This can be tricky business to stay on top of, especially with my long sleeping hours.
Sleeping through my pain killer intake is the worst for me personally but irrespective of that there are still four children that require as much attention as I can give and I also have to find time eat. I went down to 135lbs when I was on chemo. I am currently at 140lbs and holding. I have been trying to increase my caloric intake with supplements and energy drinks but again, my increased need for sleep hinders my ability to stay on top of it. There is also the fact that my appetite is weak and the numbness in my face and lips (the radiation did not work as well as hoped, also related to my eye problem) can discourage me sometimes from eating as much as I should.
It amazes me how I essentially have free reign with my 24 hour days and yet sometimes still don`t have enough time to do everything that needs doing. We take for granted our ability to do so many things and use that ability to distract ourselves from life by keeping ourselves busy all the time so we don`t have to think about the important stuff, y'know, life, the universe, and everything.
I wanted to expound on this a little further but my eyes are just not cooperating so I'm gonna cut it short and try again later.
Cheers to all, I hope life is being good to you.
Sunday, August 7, 2011
Strange days.
The world is a different place for me now.
My world is one of disconnection from what others might call reality.
I am a star, but also a spectator.
A star due to the attention given to me by Doctors, Nurses, Technologists of all kinds trying to "cure" me, and also from the attention and favour showered upon me by my loved ones.
A spectator due to my inability to to participate in so many things that I took for granted previously.
These past several weeks I've been put through the wringer; physically, emotionally, spiritually. There have been good moments, but overall, it's been very challenging and based on my itinerary for the next several weeks it isn't about to get any easier. I have been radiated and chemo-ed almost to death, with little positive affect, [Not zero, but not enough for me.] and now I'm joining a clinical study to test a new drug with hopes of greater success. [Hope...hmm...sometimes I feel I'm running short on that.] This battle has taken me to places that I never imagined. I was...naive perhaps, maybe a little too hopeful? I have felt my strength waning, my resolve...dissolving. It's not been pleasant. But...I am currently on an up swing, my strength and my resolve are growing once more, and I am going to ride that train to it's fullest, because right now, that train is all I've got.
My world is one of disconnection from what others might call reality.
I am a star, but also a spectator.
A star due to the attention given to me by Doctors, Nurses, Technologists of all kinds trying to "cure" me, and also from the attention and favour showered upon me by my loved ones.
A spectator due to my inability to to participate in so many things that I took for granted previously.
These past several weeks I've been put through the wringer; physically, emotionally, spiritually. There have been good moments, but overall, it's been very challenging and based on my itinerary for the next several weeks it isn't about to get any easier. I have been radiated and chemo-ed almost to death, with little positive affect, [Not zero, but not enough for me.] and now I'm joining a clinical study to test a new drug with hopes of greater success. [Hope...hmm...sometimes I feel I'm running short on that.] This battle has taken me to places that I never imagined. I was...naive perhaps, maybe a little too hopeful? I have felt my strength waning, my resolve...dissolving. It's not been pleasant. But...I am currently on an up swing, my strength and my resolve are growing once more, and I am going to ride that train to it's fullest, because right now, that train is all I've got.
Tuesday, June 28, 2011
The "Sandman" is doing overtime.
I've been sleeping since last Thursday. I wake up long enough to pee, sometimes I can grab a bite to eat, and then down I go. My most recent chemo treatment, which came the day before that, has been a little harder on me than most.
According to my Doctor the chemo has successfully lowered my PSA count to a point where he is considering beginning a new form of treatment which will have less side effects. Unfortunately it has also lowered the platelets in my blood, which apparently is the cause of my unwanted slumber. Due to this uncontrollable need for sleep I have been unable to conduct my customary amount of research to determine how this actually works so I'm kind of flying blind right now with regards to how I'm feeling and what I might do to help rectify the situation.
I'm told that a blood transfusion is required to get my counts back up and allegedly make me feel better, so, that is where I'm going today.
I hope it works so the "sandman" can take some time off and I can stay awake for more than 45 minutes at a time.
Ah, here he is now. Time for another nap.
According to my Doctor the chemo has successfully lowered my PSA count to a point where he is considering beginning a new form of treatment which will have less side effects. Unfortunately it has also lowered the platelets in my blood, which apparently is the cause of my unwanted slumber. Due to this uncontrollable need for sleep I have been unable to conduct my customary amount of research to determine how this actually works so I'm kind of flying blind right now with regards to how I'm feeling and what I might do to help rectify the situation.
I'm told that a blood transfusion is required to get my counts back up and allegedly make me feel better, so, that is where I'm going today.
I hope it works so the "sandman" can take some time off and I can stay awake for more than 45 minutes at a time.
Ah, here he is now. Time for another nap.
Sunday, May 15, 2011
Chemo sucks!
Eleven days! It's been eleven days since my last chemo treatment and I am only now able to stay awake for longer than six consecutive hours. It's been a rough ride this time around.
I know this stuff is supposed to help me, to make me better, but sometimes I wonder if it's worth it. It knocks the shit out of me and leaves me feeling pretty low.
The battle continues...
I know this stuff is supposed to help me, to make me better, but sometimes I wonder if it's worth it. It knocks the shit out of me and leaves me feeling pretty low.
The battle continues...
Subscribe to:
Posts (Atom)
